Are we all screwed?

[nasibi]

Yes, we are.

[Juvo]

Ghost, why do you assume that under perfect conditions this forum could find a 'cure'? This is an extremely rare neurological condition, and we're a few dozen anonymous strangers who mostly have no medical training. If we were trying to find a cure for a well-established condition like Parkinsons or MS everyone would see how unrealistically optimistic it all is.

Management, treatment, and psychologically coping with symptoms are goals that are actually attainable.

What's our alternative? We've been doing the alternative for how many years now with no results. You're basically saying because this is relatively rare we should give up and wait for some "medically trained" Phd to take up our case. Look around the forum, the people who eventually got better and left took something and experimented, which requires no medical training. All it requires is a will and a want to get better. Ghost has offered to reimburse users for their genome kit and from what I can tell, hasn't received too many interests. This also doesn't require medical training. The genome study is one of the most TANGIBLE means of looking into us strangers to see what makes us unique from the millions who escaped this fate.

[iull1k]

Ghost, why do you assume that under perfect conditions this forum could find a 'cure'? This is an extremely rare neurological condition, and we're a few dozen anonymous strangers who mostly have no medical training. If we were trying to find a cure for a well-established condition like Parkinsons or MS everyone would see how unrealistically optimistic it all is.

Management, treatment, and psychologically coping with symptoms are goals that are actually attainable.

What's our alternative? We've been doing the alternative for how many years now with no results. You're basically saying because this is relatively rare we should give up and wait for some "medically trained" Phd to take up our case. Look around the forum, the people who eventually got better and left took something and experimented, which requires no medical training. All it requires is a will and a want to get better. Ghost has offered to reimburse users for their genome kit and from what I can tell, hasn't received too many interests. This also doesn't require medical training. The genome study is one of the most TANGIBLE means of looking into us strangers to see what makes us unique from the millions who escaped this fate.

You're right. But we should be more active to spread information about genome project and other project. We need to send mass PM, pin Genome thread on the first page, contact other guys from reddit,ssrisex and so on. We need to convince that we need this. Everyone needs to be involved.

[GIXXER]

I dont like reading or seeing threads like this.

[Jaxx]

I dont like reading or seeing threads like this.

Entirely agree

[magnilo]

ive had good sensitivity improvement and my libido is high, the only issue i have left is lack of spontaneous erections and erection quality
this i can fix with cialis easily. for delayed ejaculation, abstinence fixes it.
so i would say ive improved quite a bit over ten years.

its a long process. in my opinion this defeatism is counter productive and it is symptom of some type of psichiatric discomfort which has to be easened: each one has to do it by himself and in all honesty, that is probably the first step to be taken to treat "pssd"

[BrokenDoll]

You do know the power of thought is really intense, right? If you think you're screwed then you are. If you dont think you're screwed, then you're not. It's not going to happen over night, but there is always hope. Change your way of thinking. Yes, it sucks. But people lose things important to them all the time. Loved ones, limbs, eyesight. If you put it into perspective, we're blessed. And we can recover. Many people have improved years later, I've read about a case recently where the person recovered 11 years later, without experience windows for many years previously. I've come across a few recovery testimonies like that, actually. Years of really bad PSSD with no improvements at all until years later. You are not hopeless case. None of us are. if other people can get better, why not us? I was talking to a friend who knew someone close to them who had it for 8 years. She never posted her recovery online, either. So there are people out there who had PSSD and get better but never report it.

[Juvo]

ive had good sensitivity improvement and my libido is high, the only issue i have left is lack of spontaneous erections and erection quality
this i can fix with cialis easily. for delayed ejaculation, abstinence fixes it.
so i would say ive improved quite a bit over ten years.

its a long process. in my opinion this defeatism is counter productive and it is symptom of some type of psichiatric discomfort which has to be easened: each one has to do it by himself and in all honesty, that is probably the first step to be taken to treat "pssd"

I love seeing this. It's easy to look over a few years and go "not much has improved" but time can and does help. Not saying everyone will experience the same but this is entirely possible. I agree with the defeatism, it's hard, incredibly hard, and everyone here has been to some dark places, but we need to help ourselves and ultimately help each other continue on.

[Ghost]

A huge THANK YOU to everyone who has their genomes in the process of being run. I will pin to the top of the site and to the reddit. Those are good suggestions.

I assume that under perfect conditions we could find a cure because we'd have nearly 1,000 people researching. Is this really realistic? probably not, but I'd rather strive for that and expect that than the other way around.

I also hate reading threads like this. Actually, I hate reading anything that's negative at all. I'm happy reading symptoms, but not thrilled when negative emotion is tied in.

Example 1 (Symptoms):
I have emotional and sexual anhedonia for 5 months after 4 days of Lexapro 20mg.

Example 2 (Emotion):
I was castrated by these drugs 5 months ago it's such bullshit these doctors did this to me. I never feel sexual anymore and feel no emotions. That's what makes PSSD the worst condition known to man.

When Sonny made the site he intentionally named it "PSSD Collaborative Research". The site is meant to focus on RESEARCH. That's what separates it from other sites. Sites like surviving antidepressants are less research focused and more emotionally focused. That's fine. I'm not saying that one is inherently better than the other. But I will say that focusing on symptoms and treatments is more likely to get us feeling better, and it's what this site was created for.

[TalkingAntColony]

Guys, there is no point in being negative. You are only making your life worse than it already is.

The best thing to do, is to simply believe we WILL find a cure SOON, as long as YOU (the reader) help the community. No one knows for certain whether a cure will be found. But rather than wallow in the uncertainty, use a little self-delusion to concentrate on a positive outcome and give you a little motivational boost to get things done. Things like genome tests, self-experimentation, and research. There are dozens of things out there to try, and even if it doesnt work, the result is valuable data to the community.