Question for long term pssd guys

[Markc1113]

Thanks guys for all the feedback

[sovietxrobot]

PSSD for 6-7 years. I have made a lot of improvements by refining the stack of supplements/medications I take, but my baseline hasn't moved an inch.

[AnhedonicApe]

Those who heal naturally do not necessarily post stories about it and even less probable hang around on any forums or groups. Only persistent sufferers are around active. The number of registered users tells nothing about how they later evolve with time. There are somewhat like 100 total max 200 people around who ever posted a thing. We cannot talk probabilities and if we do then if for the number of people who ever posted there are 50 recovered? Thats not that bad. Main point is lets not project and generalize everything on everybody and the whole syndrome and how its gonna evolve for someone else. Probabilities cannot be applied just like that, be it natural recoveries or time improvements, it could be Yes or No that we cannot predict for someone else and give probabilities

I always find this quite a weak argument. That those who heal naturally wont post that here/hang around here. This is a devestating condition and not something like the flue, and people often seem very eager to tell when they have healed (often too early), because it's something very special. But sure, for the sake of the argument, we can't tell, doesn't this count for the other side also then. You often tell people here on the forum there is light at the end of the tunnel, don't worry, etc. I have seen you write this several times. Is this not just as unfair, because you say yourself here how we can not predict this, and don't know how things will evolve. Why are such remarks any more true then? I mean, that is just as realistic as me telling the opposite.

[afx]

I have seen many posts on many occasions that we are doomed and the condition is basically unrecoverable. I say what I say because I see there is a light at the end of the tunnel. Mesolimbo sees it the same as me as well. And there are many recoveries and improvmenets to support this - natural as well as with intervention. Active people posting are mostly a collection that remains with persistent symptoms, those who got a lot better or recovered are mostly not active - its not unique behavior to PSSD. People want to forget and get on with their lives.

[AnhedonicApe]

I have seen many posts on many occasions that we are doomed and the condition is basically unrecoverable. I say what I say because I see there is a light at the end of the tunnel. Mesolimbo sees it the same as me as well. And there are many recoveries and improvmenets to support this - natural as well as with intervention. Active people posting are mostly a collection that remains with persistent symptoms, those who got a lot better or recovered are mostly not active - its not unique behavior to PSSD. People want to forget and get on with their lives.

Well what you say here is really, ''my observations that PSSD will cure are valid, but when you have observed that people mostly do not naturally heal, I will say we simply can not know/look into future.'' Why, when you say PSSD will cure, we can look into the future. But when I say, people mostly do not naturally heal, i can not look in the future. See what I mean? I am not saying PSSD can not cure. I am saying that me stating my opinion about PSSD generally not healing naturally with time is just as valid as your opinion when you say people dont need to worry/it will cure. We both have made observations, and both have drawn our conclusions from this. In both cases we don't know for sure.

[Scout19]

I think the best thing you get with time is more acceptance/being calm about the whole PSSD thing. Actual symptom improvement with time is rare/unlikely.

Not true at all, don’t scare the poor guy. A lot of people improve to some extent over time, but I will admit that to get a full 100% recovery you will need to take something, a natural full recovery is unlikely.

Mmmm. I am in a groupsapp with people ranging over all the years. 13 years, 6 years, 2 years. The biggest part did not improve with time, with some rare exceptions. I have to say, most improvement is made in the first months, after that, it's mostly steady going (for the most). The thing is, we are dealing with an altered homeostasis here. Why would there be improvement with time? The body thinks we are doing just fine within this new homeostasis and sees no reason to ''heal''. Like I said, it's not impossible, but at least the people I speak with do not have symptoms improve overtime, mostly the first months, is when changes still happen. Saying a lot of people do heal with time, is not what I see happening in the groupsapps or on the forums. It's more rare than common or a lot. I don't want to give this guy a false idea of what time does for this condition, it's minimal in my experience. Also not saying PSSD can't be cured etc., just saying I wouldn't count on time here.

As a counterpoint, does the fact that some people experience windows of improved functionality not suggest the body is attempting to restore the original homeostasis? I’ve had PSSD for two years myself. I sometimes get windows that will last anywhere from a few hours to a few days. Not 100% but maybe 60-70%.

For those of you who are longtime sufferers, do you ever experience windows and do they increase in duration and frequency?

[afx]

I am not a nutural healing superfan anyway. By this I mean pure natural healing doing zero nothing - this kind of absolute natural healing may be in my opinion much more trickier compared to at least some (safe) approach - that is my opinion. But generally - I base my observations and focus my mindset on recoveries and improvements I have seen for those years - partially collected on Ghosts website now and so I see things from a more positive angle rather than negative. I see the glass where is a water, others may see it as almost empty. You present Your view and I present mine and my arguments

[Kk88]

10 or 11 years for me here (can't believe it writing that). I can't say I have seen any natural improvements, nor do I believe I will have any. So many things I've experienced during this have given me the strong belief that 'drugs did this to me, only drugs can undo this to me'....I am a believer that things have been switched off and will require something to switch them back on!

On the flip side I have learnt to deal with it. When I finally found out what 'pssd' was about 3 years ago I went into a total suicidal meltdown, but now I realise things aren't that bad. I do believe we will find a cure.