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Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Sat Nov 03, 2018 10:24 am
by anacleta

Re: Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Sun Nov 04, 2018 12:39 am
by north4
Antidepressants were supposed to help me but they ended up making me impotent


In the early 2000s, I was prescribed anti-depressants and anti-psychotics as a 10-year-old; they were meant to help with the symptoms of my OCD and Tourette’s Sydrome. They never stopped my tics, or the repetitive behaviour that’s part of my OCD, but not taking them was never considered. I never imagined the treatments I had as a child would have the effect it did though – essentially making part of my body numb and cease to work. After all, I was too young to know what ‘impotence’ was. I hadn’t heard of the word ‘drugs’ either, but I was very familiar with medications – I had to take them every day. It wasn’t until I was 21 that my genitals began to feel numb, like a piece of meat hanging between my legs. People with mental health issues deserve more than this. My penis stopped rising and tingling in the presence of attractive women, and my girlfriend at the time pointed out that my erections weren’t working properly. I gradually began to feel like I had lost a significant part of myself; any genuine enthusiasm had gone, like I was no more than a shell. My girlfriend didn’t understand and became angry, and it wasn’t long before we broke up. Reluctantly, I accepted that this was real; I went to the doctors and, with their advice, stopped taking the drugs. Shortly after, there was a slightly overwhelming counter-surge of uncontrollable arousal, ejaculation and orgasm spells called Persistent Genital Arousal Disorder (PGAD), but after that subsided, I found myself with even less sexual arousal response than before. I knew that the impotence was being caused by the drugs and began doing the humiliating rounds of erectile dysfunction diagnostic clinics. I was always the only man without grey hair and a walking stick. I remember one harrowing occasion, when I was in a clinic being injected in the penis with Viagra, I wondered what the other young people my age were doing and how they were enjoying their freedom. I became distant from other people, and felt exposed when the opposite sex showed interest. One rare time I went to a party, a girl was staring at my genitals seductively and, for what seemed like an eternity, absolutely nothing happened. Another friend used to put her feet teasingly on my genitals. I think she guessed somehow, and we stopped being affectionate soon after. I’d feel particularly terrible around my male peers with whom I played football. I’d have no desire to go on holiday, and even now I tend not to hug people, and this has probably gotten worse over the seven years I’ve lived with this condition. It is an odd torture to go through at such a young age. Eventually, I was referred to a uro-neurology team at a central London hospital and the doctor there told me: ‘You would be surprised, I actually get a lot of people that are referred to me with this’. He confirmed that I had Post-SSRI Sexual Dysfunction (PSSD), and said that I would not necessarily go back to normal as there is no cure. I am now ashamed that my response to hearing this news was to storm out of this doctor’s office in anger. I blamed the drug companies, feeling that I hadn’t been sufficiently protected. I have spent a lot of my life wishing I could die, especially in my early 20s. But my desire to live my adult life free from impotence was enough for me to venture through the unknowns of antidepressant withdrawal and persevere through months of horrible symptoms, such as full-body electric shock sensations, sometimes referred to as ‘brain zaps’.
I have been living in shame and silence, but somewhere deep inside I know that I cannot be alone. I have done my own research on long-term PSSD and was shocked to see that there are thousands of others reporting it on the Internet. My aim now is to raise awareness about this condition, because people are just not being given enough information when they are advised to take medications for life. It is an absolute outrage that drug leaflets do not mention this possible outcome in detail. Even now, for the drugs I was prescribed, while sexual dysfunction is mentioned as a symptom during treatment, no mention is made of permanent harm. The advice given to my mum then, and to other vulnerable and desperate people suffering with mental illness, is that, ‘there is nothing to lose – if there are any side effects, they will be completely resolved as soon as you stop taking the drugs’. But we now know that is not always the case. Mind, a prominent UK mental health charity, actually states, ‘Certain sexual problems are a potential negative side effect of all SSRI and SNRI antidepressants… Sometimes these side effects persist after you’ve come off the drug, and might continue indefinitely.’ My mum has since said that if she had been given more information about PSSD when I was a child, she would not have agreed to me taking the pills. Of course, I live in hope that one day there might be a cure for my symptoms, and I can feel like a human being again – I hope a cure is found for everyone living with this condition. People with mental health issues deserve more than this.

Re: Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Sun Nov 04, 2018 9:35 am
by Kk88
- [ ] Amazing. Metro is so widely read. Anyone know if this made it to print or just online? Great, either way. I assume this person isn’t part of our community, or would have posted about this here. I wish there was a way to bring everyone together, so many people suffering who haven’t found ya, and we need everyone here!

Re: Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Sun Nov 04, 2018 9:35 am
by Kk88
- [ ] Amazing. Metro is so widely read. Anyone know if this made it to print or just online? Great, either way. I assume this person isn’t part of our community, or would have posted about this here. I wish there was a way to bring everyone together, so many people suffering who haven’t found us, and we need everyone here!

Re: Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Sun Nov 04, 2018 10:53 am
by Snake
We all know that recognizing of PSSD is just a matter of time. Our mission is to speed it up.

Re: Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Mon Nov 05, 2018 4:34 am
by fema4psyciatrists
Kk88 wrote:- [ ] Amazing. Metro is so widely read. Anyone know if this made it to print or just online? Great, either way. I assume this person isn’t part of our community, or would have posted about this here. I wish there was a way to bring everyone together, so many people suffering who haven’t found us, and we need everyone here!


It is me. I don't think it will make the print version but I don't know. Maybe if it trends. But the Metro is the fastest growing online newspaper in the UK. Thanks for the original poster for posting this, I have been quite ill at the moment and I have a trapped nerve in my arm.

If you can help circulate it as much as possible (share buttons) I think that occasionally those opinion/story articles can make it on the front page.

Re: Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Tue Nov 06, 2018 5:26 am
by Kk88
fema4psyciatrists wrote:
Kk88 wrote:- [ ] Amazing. Metro is so widely read. Anyone know if this made it to print or just online? Great, either way. I assume this person isn’t part of our community, or would have posted about this here. I wish there was a way to bring everyone together, so many people suffering who haven’t found us, and we need everyone here!


It is me. I don't think it will make the print version but I don't know. Maybe if it trends. But the Metro is the fastest growing online newspaper in the UK. Thanks for the original poster for posting this, I have been quite ill at the moment and I have a trapped nerve in my arm.

If you can help circulate it as much as possible (share buttons) I think that occasionally those opinion/story articles can make it on the front page.


Great - such good work getting your story out there - metro is a big deal, well done!

Re: Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Thu Nov 08, 2018 3:00 pm
by fema4psyciatrists
Kk88 wrote:
fema4psyciatrists wrote:
Kk88 wrote:- [ ] Amazing. Metro is so widely read. Anyone know if this made it to print or just online? Great, either way. I assume this person isn’t part of our community, or would have posted about this here. I wish there was a way to bring everyone together, so many people suffering who haven’t found us, and we need everyone here!


It is me. I don't think it will make the print version but I don't know. Maybe if it trends. But the Metro is the fastest growing online newspaper in the UK. Thanks for the original poster for posting this, I have been quite ill at the moment and I have a trapped nerve in my arm.

If you can help circulate it as much as possible (share buttons) I think that occasionally those opinion/story articles can make it on the front page.


Great - such good work getting your story out there - metro is a big deal, well done!


Thanks K. I hope people continue to push and gain breakthroughs in any angles possible. my arm is screwed lol

Re: Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Thu Nov 08, 2018 3:00 pm
by fema4psyciatrists
Kk88 wrote:
fema4psyciatrists wrote:
Kk88 wrote:- [ ] Amazing. Metro is so widely read. Anyone know if this made it to print or just online? Great, either way. I assume this person isn’t part of our community, or would have posted about this here. I wish there was a way to bring everyone together, so many people suffering who haven’t found us, and we need everyone here!


It is me. I don't think it will make the print version but I don't know. Maybe if it trends. But the Metro is the fastest growing online newspaper in the UK. Thanks for the original poster for posting this, I have been quite ill at the moment and I have a trapped nerve in my arm.

If you can help circulate it as much as possible (share buttons) I think that occasionally those opinion/story articles can make it on the front page.


Great - such good work getting your story out there - metro is a big deal, well done!


Thanks K. I hope people continue to push and gain breakthroughs in any angles possible. my arm is screwed lol

Re: Antidepressants were supposed to help me but .. Metro nov 3, 2018

Unread postPosted: Sat Nov 24, 2018 8:08 am
by Leo625
Snake wrote:We all know that recognizing of PSSD is just a matter of time. Our mission is to speed it up.


Yes seeing the awareness of this slowly start to grow gives me alot of hope. Something that can completely change/hinder your life should be given more warning before pumping out these prescriptions to people. Even if it doesn't happen in 100% of cases even 10% should be enough for a warning.