Page 1 of 3

Investigation into potential treatments for improvement (2017)

Unread postPosted: Tue Dec 27, 2016 9:26 pm
by fablecloth
My frustration at having PSSD has lead me to revisit my determination to try things that work in dealing with PSSD. I'm sick of wasting my life waiting for a cure. That might come, but we don't know when. In the meanwhile, I intend to systematically try things that at least *help* to reduce its severity, with the aim of making life with PSSD a little more bearable.

Anyone is welcome to contribute here, with *actual* efforts they've tried. But not historical trials, only things tried in 2017. There are separate efforts underway to research potential treatments, and this could be seen as the second stage of those efforts.

The emphasis here will be on practical outcomes. Think of this as more of a "what can we ACTUALLY do to try to improve PSSD" effort, as opposed to "what might in theory help/cure PSSD".

Given this is a team effort, honesty is key. If you are not able to continue with your effort, or give up, or aren't as methodical as you're supposed to be, that's okay. Just let us know - what's more important is the bigger picture that builds up over time.

An effort like this will hopefully give us a somewhat reliable report of potential treatments, as well as provide a means for us to keep occupied in a positive and productive manner. I know having a concrete goal to work towards will provide me with a useful distraction.

Hopefully together we can gradually develop a "treatment"/"coping" regime that provides reasonably reliable improvement in symptoms.

Re: Investigation into potential treatments (2017)

Unread postPosted: Tue Dec 27, 2016 10:18 pm
by fablecloth
Over the next couple of months, I will be trying:
  • Regular exercise (3 days per week weights; 2 days per week cardio)
  • Gingko biloba (240MG, twice daily)
  • Fish oil
  • Regular meditation

I've experienced improvements in the past with regular exercise. I'm hoping I can emulate that and that over time this will lead to lasting improvement.

I'll report in semi-regularly with my progress.

Re: Investigation into potential treatments for improvement (2017)

Unread postPosted: Mon Jan 30, 2017 12:00 am
by fablecloth
Reporting in - it's been a month now.

I have stuck to my regime above, with very limited success.

The limited success comes from actually trying to have sex with one of my closest friends - we only recently confessed strong feelings for each other (I provide this for context. This was not a casual encounter or a hook-up). I tried to push her away out of fear of the PSSD, saying I was on ADs and there were sexual side-effects, but I suppose she just didn't realise how serious an issue it was, and persisted. Anyway, I gave in, thinking it might be okay. I occasionally get spontaneous erections during the night - perhaps 80% rigidity, but it's something. I thought that those erections, combined with real stimulation (physical and psychological), might lead to things being okay.

We tried a few times. The only times I got hard were initially at the beginning of foreplay for perhaps a couple of minutes, or if I hadn't ejaculated for over a week. Successful intercourse was achieved only when I hadn't ejaculated for over a week, and even then, duration was only a few minutes (if that), and rigidity was about 80-85%.

Other times, I either: (a) failed to get hard at all; (b) lost my erection after a couple of minutes of foreplay; or (c) lost my erection during intercourse.

Very depressing, given that I know this will be too hard for her - I don't think she'll be able to cope with a geriatric-style injection regime, with no room for spontaneity (we're pretty much at the stage where we'll try to go back to being friends).

My memory seems to be mildly improved, for what it's worth.

I'll keep up the regime for now - I have nothing else to look forward to (other than hearing of the success of others).


Cheers

Re: Investigation into potential treatments for improvement (2017)

Unread postPosted: Mon Jan 30, 2017 12:23 am
by fablecloth
I've also tried Viagra (100MG) and Cialis (20MG) on different occasions, with no luck at all - including lack of ability to get erections, as well as losing erections.

Re: Investigation into potential treatments for improvement (2017)

Unread postPosted: Mon Jan 30, 2017 4:04 am
by Bigmum
:( i thought.....that it can help.....once.....25 mg sildenafil worked for me very well.....even soft glans disapeared for 1 day.....;/

Re: Investigation into potential treatments for improvement (2017)

Unread postPosted: Mon Jul 03, 2017 1:19 am
by Logical
Great to see someone doing this
it's been 17 Years for me male now 56
Not a thing I've tried in all the years (cant list them all yet)
has made any difference , same time willing and able as I cant see what I have to lose

Re: Investigation into potential treatments for improvement (2017)

Unread postPosted: Mon Jul 03, 2017 1:42 am
by danny
I want to share with you my experience this year in Akopanturka.
In the first month there was a huge improvement, the penis was longer all the time, and was strong many times.
I have had several sexual relationships. Although I did not have much fun. But the ability to sustain gave me a happy feeling.
Unfortunately, however, the horizon suddenly stopped helping and returned to the initial state of a small, dysfunctional penis.
Maybe you should try.

Re: Investigation into potential treatments for improvement (2017)

Unread postPosted: Mon Jul 03, 2017 2:06 am
by fablecloth
Thanks Logical and danny.

I saw these replies and thought I'd provide an update.

For the last 6 months, I've been regularly going to the gym (weights, 3 times per week), and running (about 5-10KM, 3 times per week). I've been going to kundalini yoga at least once per week as well, which is a form of yoga that has an element of guided meditation.

My gym has a sauna, so after doing weights I've been going to the sauna for about 20-30 minutes, broken down into 2-3 sessions. I intersperse those sessions with cold showers (absolutely cold, without turning on the hot water tap at all).

I also have been maintaining a social life, going out with friends, going on trips and hiking, etc.

I have noticed modest improvements. Nothing spectacular or dramatic, but improvements nonetheless. I look forward to the opportunity to test things out properly, and if/when that happens, I will be sure to provide a further update.

I've also been taking a variety of supplements (gingko biloba; Vitamins D, K, and B (complex); bioperine; ashwaghanda; fish oil; schisandra; CDP choline).

I doubt that the supplements have provided any improvements. To my mind, SSRIs are quite potent synthetic pharmacological substances. Some plants and herbs (often in relatively low doses) are most unlikely to reverse any damage done by those SSRIs.

I will continue to do regular exercise, yoga/meditation, and take cold showers. I will maintain an active social life and not shut myself off from the world.

I've gone through certain stages of grief (those 7 stages or whatever), from bargaining (with God or otherwise, and I'm not even religious), to fear/dread/panic, to sadness, and am slowly coming to acceptance. I used to regularly feel panic or dread, but that is slowly, in stops and starts, coming to an end.

I've had it pretty bad in life. I didn't really have relationships prior to PSSD, so I feel as though getting PSSD, just as I've learnt to deal with my anxiety and make friends, etc., is added insult to injury.

It's tough, especially now that I have an active social life and people have no idea of what I have. I have female friends that are interested, I've lost the chance at a relationship with one of my closest friends and for whom I have feelings due to this, and I've been asked why I'm not dating and don't pursue anyone. It's frustrating and upsetting, often overwhelmingly.

But, as I've posted in another thread previously, I've got to go on with my life, as shit as it sometimes seems. I've got to build up a life so that when I finally conquer this thing, I'll have a life to which to return.

I'd encourage all of you to get into regular exercise and meditation. And to try new treatments, and to report on them.

I'm turning 31 this year. I don't want to be in the same state in 5-10 years. I've lost enough time already. I hope that all of you reading this feel the same way and find motivation to do something, not matter what your age.

Progress will be slow (perhaps excruciatingly so), frustrating, and non-linear. But I know that with time we can coax our bodies back to normalcy.

With this forum, we can lean on each other and draw on each other for support.

Re: Investigation into potential treatments for improvement (2017)

Unread postPosted: Mon Jul 03, 2017 2:18 am
by danny
I also try to go to the pool at least five times a week to strengthen my body. Maybe it will help

Re: Investigation into potential treatments for improvement (2017)

Unread postPosted: Mon Jul 03, 2017 4:20 am
by Jones
fablecloth wrote:I've also tried Viagra (100MG) and Cialis (20MG) on different occasions, with no luck at all - including lack of ability to get erections, as well as losing erections.

100 mg didnt work??? Damn, it makes me ROCK HARD most of the time even when im fully impotent..